“Bring consumer protections into the digital age” – HLC and Confidentiality Coalition Support Digital Protection Solutions for Americans

The Healthcare Leadership Council (HLC), an association of CEOs and C-suite executives from all sectors of healthcare, responded to the Energy and Commerce Committee’s Privacy Working Group’s request for information (RFI) exploring the parameters of a federal comprehensive data privacy and security framework. The comments were submitted on behalf of HLC and the Confidentiality Coalition, a diverse alliance dedicated to balancing the protection of confidential health information with the need for efficient, interoperable systems that enhance healthcare delivery and clinical research.

“Our collective members prioritize efforts to provide clear digital protections for Americans while navigating the complex state and federal data privacy and security laws which often create conflicting legal requirements in the health sector,” said Katie Mahoney Executive Vice President and Chief Policy Officer of HLC. “We are eager to collaborate with the Privacy Working Group to develop a path forward and bring consumer protections into the digital age while ensuring that the United States continues to lead in a globally competitive environment.”

In addition to responding to the specific questions in the RFI, HLC’s and the Confidentiality Coalition’s comments focused on the critical need to harmonize federal data privacy and security standards with the Health Insurance Portability and Accountability Act (HIPAA).

Further, the groups are “extraordinarily concerned about the impact that changes in privacy policy could have on clinical research, and consequently drug development.”

You can view the response here.

Published April 9, 2025